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acitivist, advocacy, Advocate, depression, essays, LGBTQ, mental health, mental illness, mentally ill, prozac, psychiatry, psychology, race, schizophrenia, stereotypes, stigma, suicide, writing
Yesterday, after I read this article, I wanted to write a blog post about it and save it for today. I couldn’t. I was so angry, so frustrated, and had so much hurt about how people view schizophrenia that I could not sit down and peacefully post what I thought.
I am tired. I am so tired, and it is a deep bone tired and a broken heart tired that I can’t seem to shake. Every day one of my friends (real friends, people I know and see a couple of times a year) post about being “crazy” or on “Prozac” or something that I find derogatory, but that they find humorous about mental illness. I can’t always fight that battle. Yesterday, I was going to comment that it is suicide prevention month and making jokes about Prozac is particularly insensitive this time of year, but I didn’t have it in me. It is so prevalent. The same people who would slap you down (rightfully so) if you made a joke about race, or LGBTQ, are the ones that easily throw out words that stigmatize and marginalize the mentally ill. It reminds me of the Tracy Chapman song, “Revolution” only I want her to be talking about mentally ill people and our advocates rising up instead of poor people. I long for a revolution in language, treatment, civil rights, etc. I want to be represented accurately not as a joke, or a mass murder, or any of the other stereotypes currently in the brains of so many Americans.
In the article I linked to, the woman telling her story had a parent who had schizophrenia. She refers to him in the first part of the article as a monster. She does this again and again. She also says she didn’t want to have children because she was afraid she would have to raise a monster like her father. By the end of the article she is saying her father was a loving soul with a brain disease and that she froze her eggs so she could have children if she finds a loving partner, and she will love that child even if s/he develops schizophrenia.
Although the author had a life changing epiphany about schizophrenia, she did so much damage in the first part of her article that I didn’t care about her current acceptance of the disease. My husband wasn’t bothered by the article like I was, and maybe you won’t be either, but the fact that the Huffington Post found the article worthy of printing (when someone is basically calling a whole group of people monsters and playing into every stereotype) I find it disturbing. The comment section, where everyone seemed to congratulate her on her bravery, and amazing ability to share such an intimate story, also disgusted me. I don’t think it is brave to go from thinking people with an illness are monsters and shouldn’t be born to thinking they are human beings. Is that really brave? Is that really something we want to applaud? I don’t applaud the author at all. I certainly don’t applaud Huffington Post for making this a widely spread article.
Once again, someone said that the world would be a better place if people with schizophrenia weren’t ever born. Sure, she changed her mind, but the seeds of her ignorance were read and placed in the minds of many. Did you know in Nazi Germany they killed the mentally ill and the disabled first? Yes, they didn’t think we should live either.
I have no smart ending, no words to tie this all together. Do you know how tired I am? Every day a battle just to be seen as human.
It’s sad indeed…
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I am having complicated feelings on the subject, which I will try to articulate in no particular order.
You have made me very much more aware of the use of words like “crazy” and “psycho,” etc., and I am much more careful with my language out of respect and greater empathy. I had not often thought about the connection to real, suffering people when I used those words.
I have been around people experiencing psychosis, and some of the experiences have been terrifying. A child could easily use the term “monster” because of feeling terrified and powerless. I would even say she might have gotten PTSD. Most kids do not have the development to think, “That must be horrible for my father. He has a severe illness. I feel so bad for him.”
I am trying to imagine the horror at wondering if others are afraid of you or think you are or could unpredictably turn into a monster. I felt upset when I was the only White person in Aldi one day and some people made some rude remarks to me based on my race. I felt scared and shaken, and yet that was a teeny, tiny blip of an incident. Things like that have hardly ever happened to me in my 51 years.
I love the authenticity and passion you put into what you write, and I hope you will always continue this way. I think that writer is telling her experience in the same way. It is her truth. She was scared, and I will give my empathy to you both.
I know you are not a monster. You are a lovely woman created in God’s image.
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I’m not sure, but I think if someone was writing about race in the same way, or someone from the LGBTQ community, people would be in an uproar. If someone said someone from a particular race was a monster and they didn’t want to have children with someone from that race, because they too might be a monster, I think people would view this much differently. My only point is, that people with a severe mental illness can be talked about in almost any fashion, and no one seems to think that doing so is inappropriate, wrong, or hurtful. I see it all the time. Honestly, it wears a person down – we can be called names, shamed, avoided, made fun of, called monsters, called criminals, etc. It happens every day. I think her article would have been fine, if she would have thought about her own ignorance regarding mental illness and brought that up in the beginning of the article. She went half way through her piece having people believe that mental illness = monster. I don’t mind at all if you see it differently – that is fine with me. My husband didn’t have as strong of a reaction as I did, but if you belong to the group being called “monster” I think it has a different impact.
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I can really see your point.
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I would “like” your comment to let you know that I have seen it, but my comment section is acting up 😦 I hope you have a good day 🙂
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No worries! 🙂
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Thanks!!! 🙂
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I enjoy this blog for a few reasons, one being that it helps to expand my knowledge of those with schizophrenia. As I mentioned before, I have anxiety/depression and I certainly know/have known people who are bipolar and/or have anxiety/depression. Other than my bi-polar friend having psychosis for a time, I don’t have any ‘experience’ with friends with schizophrenia. Or perhaps I do and I don’t know it. Any documentary I’ve ever watched about it has been about young men whose lives were devastated by it in their 20s or late teens. Psychosis scares/unnerves me partly because it seems so unpredictable. So it is a definite challenge to my stereotypes to read your blog. Thank you. I myself get frustrated – as I think I shared last time – when I think that people don’t really ‘get’ intense anxiety. i get discouraged reading books/articles that claim to explain it – it doesn’t even come close in my opinion. It always seems to be cutesy stories about being afraid of heights or some such, rather than showing that anxiety can manifest as intense self-hatred, anger and isolation. Not so much fun to read I guess. Phew, my rant is over!
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Thanks for sharing more of your story! I understand this, I really do.
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