Tags
diagnosis, holidays, hope, mental health, mental illness, mentally ill, new year, schizophrenia], stereotypes, stigma, wellness
We are in the midst of the holiday season, and I am looking forward to the new year. 2017 was tough on my husband and me. My husband had four or five serious medical problems (not life-threatening of course, but terrifying as he had two occasions with fevers over 103). And I had two incidents of diverticulitis and a breast cancer scare that lasted most of the year (almost over now). But there is something different about this year than any of the others I have lived.
Since I went public with my diagnosis, I am more comfortable with myself. I am more comfortable with being who and what I am in almost every situation. Even with all the stressful medical situations, and even with all the bad news out of Washington D.C., I laugh louder, harder and more frequently than ever before ( I cry a lot, too, but that is common for me – I have a very soft heart. For example, I cried when Al Franken resigned his Senate seat because I like him and I have thought of him as a fierce fighter on issues I believe in. I also cried when John McCain received his diagnosis and when some famous people passed away). Anyway, it is no big deal, but I cry easily, the great thing is, I laugh easily, too. I have a big laugh. I have a belly laugh. I have a very distinct laugh that turns heads in a room. I love laughter. I love when people laugh, and I love when I laugh. And since opening up completely about living with schizophrenia laughter is more common than ever around here.
People frequently tell me they live in the closet and are afraid of coming out because of the consequences it might have on their job, and relationships. The stigma around schizophrenia is all too real, but for me, coming out is one of the best things I have done in my life. I feel whole, and I feel free. I wouldn’t recommend being open about living with a severe mental illness with everyone, (I don’t tell everyone, but anyone can find my articles about it on the Internet). But most people who know me or have any contact with me on social media know that I have schizophrenia. I am not hiding. Are their consequences for me? Yes, I think there are. I don’t know when I apply for a job if people are discriminating against me – it is possible that they are. I don’t know if people talk behind my husband’s back and work about his “crazy” wife. I assume it can, and possibly does happen. But for the most part, people are kind, and open, accepting and compassionate toward me.
For the first time in my life, I feel free to open up a conversation about mental illness and talk about the issues, the struggles, my diagnosis, etc. I don’t feel like I am keeping more than half of my life hidden from all of the people around me. Keeping that big of a part of myself secret for so many years left me feeling distant and disconnected from other people. Now, I feel as if I am all in, and completely myself. I know not everyone has the luxury to risk what I have, and I wouldn’t want everyone too, but for me, I’ll take the increased laughter and lightness of being even if it means the occasional stab of stigma, judgment or pain.
That’s great! There is something freeing about putting mental illness out in the open rather than trying to hide it.
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I agree, but it isn’t for everyone 🙂
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This is inspiring!
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Thank you!
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I love this! Be and feel proud to be you! I searched and searched for online support groups for caregivers, which is how I found your blog. Believe it or not, through your writing you have supported me, and helped me to understand my son more. You have a lot of similarities and this is what I find helpful. So thank you, thank you, thank you, for coming out about all of this.
You are real and educational, which is what I look for. The more I understand the better caregiver and supporter I will be.
My son is getting more comfortable in talking about medication with family, and with me he is all open and free about everything. The rest I think, will take time for him to feel more comfortable talking about openly since his diagnosis is relatively new.
For me, I sometimes find myself doing a dance which I don’t like. I have to think about who the person is I am talking with, are they just being nosey, do I have the time to educate, etc. Othertimes, I am able to go on and educate, be open and honest (to a point, it is not my story to tell, it is my sons). It all become s a dance. The reason being the stigma and misinformation out there. I am trying my best, but if you or your husband (or anyone else) have any helpful tips I would love to hear them.
One thing I am also learning is how to speak in front of my son about his condition. For some reason people are drawn to him and strangers will just start taking to him. He completely shuts down now when this happens and he won’t speak. He actually has catatonic Schizophrenia. So then the strangers look to me for answers. The worst times lately have been in the waiting room of the Doctor’s offices. This week it came right out of my mouth to this man who was continually trying to get my son to talk, “he doesn’t like to be bothered.” The guy looks at me and said he would not bother my son and then proceeds to tell me about how bad his anxiety is. The more this man is talking to me, the more tense my son becomes. He was just ready to spiral when my son was thankfully called in for his appointment.
I know my son needs to learn additional coping skills and I need more tools, too. But sometimes you just want or need space. We will get there in time, but the important thing is we will not hide!
Thank you for being inspiring!
Diana F.
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Yes, the symptoms, especially when they present in public, can be difficult to explain to strangers. I can’t cope at the doctors office very well so I always have to tell the receptionist, nurses, etc. that I have schizophrenia – usually telling them helps. I’m glad you find my blog useful, that makes me extremely happy. I’m glad you are here and that you comment on the posts – I feel like we can all learn together. Wishing you well!
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Thanks for sharing. One of my family members has had psychotic episodes, and it is still unclear whether or not he has schizophrenia or something similar. I think it’s really important for people like you to share your experience (obviously to a level you feel comfortable with), so that it’s out there and people are aware of it and can understand it better.
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Thank you!
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Rebecca – I was proud of you when you came out and continue to be proud as you share your experiences and thoughts with the world. You are such an inspiration!
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Thank you, Jill. ❤
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Hey Rebecca,yes you are an inspiration to me.I try to be open about my schizophrenia too.I don’t tell everyone,but all my friends know I have it.And I wear those shirts in the summer.Too cold right now.But no one has ever asked me about having schizophrenia except for one person.At least no one has asked me anything like are you dangerous.It’s never been an issue with my pcp doctor,i don’t know if she knows I have schizophrenia or not.Sigh. Keep up the great work for us my friend! I will keep fighting the stigma here in VA.
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