Tag Archives: schizophrenia

The Power of Hello (revisited)

18 Friday Dec 2015

Posted by in hope, mental illness, schizophrenia, Uncategorized, writing

≈ 10 Comments

Tags

, , , , , , , , , ,

Fridays are the days my husband cooks for the homeless and low income. Today is a special Friday because not only will my husband and the other volunteers be serving up a hot meal, they will be giving out Christmas gifts – tarps, blankets, flashlights, etc. And my husband and a few other people made their annual 100 loaves of banana bread and put a red bow on them to give out as well.

Thinking about the homeless at Christmas time made me think about Brian.  I wrote the following post about him months ago. Wherever you are Brian, I’m wishing you health and happiness and a warm bed this holiday season.

###

Yesterday afternoon my husband and I were sitting around the house when I said, “Let’s go up to Starbucks to get out of the house.”

We walked up to Starbucks and while I ordered us an Arnold Palmer (black tea and lemonade) my husband found us a table. I saw that he had chosen one of the few empty tables next to a homeless man. I waited for our drink and then joined him.

I took out an essay I was trying to revise and said, “This is hard for me to rework. I understood immediately what the editor wants, but actually editing this and making it better is tough.”

The homeless man sitting in the corner said, “Are you a writer?”

“Yes.” I answered him.

“How many books do you have?”

“I have one book that I wrote by myself, and my husband and I published an anthology of fifteen poets. So, I guess I kind of have two books.”

“I am a writer too.” He said.

“What do you write?” He asked me.

I had often told people I write poetry and essays but I had never told them what the poetry and essays were about.  I made a guess about this man sitting near us, and decided to answer him honestly.

“I used to write poetry, but now I write essays about living with paranoid schizophrenia.”

“I was diagnosed with that too.” He said.

“What do you write?” I asked.

“My next book is going to be about the power of hello.”

My husband and I agreed that the power of hello was an excellent topic for a book. He told us his name, Brian.  He recited a poem he wrote in high school that he said was published. We talked about Frank Lloyd Wright, Hillary Clinton, Monty Python Movies, a British television show, and how he was going back to Michigan at the end of the month.

“How will you get to Michigan?” I asked.

“The city has this program. If you do some community service they will buy you a bus ticket to wherever you want to go.”

“Is someone in Michigan waiting for you?” I asked.

“My father, he is eighty-five.”

Brian said he had some really expensive Coach glasses.  He took them out of a bag and showed them to us.  They were pink and maroon. My husband and I told him they were nice. Brain said he thought they were worth a lot of money. Then he handed them to me and said, “Here, I want you to have these.”

I tried to refuse the glasses. I told him I didn’t have any money to give him for them. He said, “A gift is a gift. I don’t need any money.”

A gift is not just a gift when it is one of the few things you have.

I hope Brian writes that book about the power of hello.  I know his experience on the streets has taught him that most people won’t even look you in the eye. I also hope he takes that bus to Michigan, and receives the care and treatment he needs.

I’ll keep the glasses. I’ll fix them up with my prescription. I’ll wear them as a reminder of Brian, our shared illness, and I’ll try never to forget the power of hello.

Helping Someone In Crisis

16 Wednesday Dec 2015

Posted by in caregivers, mental illness, relationships, schizophrenia, Uncategorized

≈ 11 Comments

Tags

, , , , , , , , , , , , , , ,

A couple of years ago, my husband’s father bought a condo near us, so he could spend half of the year here. He lives the other half of the year in France, where he is a citizen. When he and his wife arrive here every year, we help them with their cable bill, medical, insurance, property taxes, etc. They simply don’t know the ins and outs of getting things done in the United States.

I’ve never really thought about how things work in this country until I have had to try to explain them to someone who has never dealt with our “system.” The way we have things set up is extremely complicated.

I know that most people don’t live on the streets by choice, but some do, and others live in camps or trailers off the grid. Seeing how complicated we have made everything, from hooking up your television, to going to the doctor, it doesn’t surprise me that people don’t want to participate in any of it. Don’t even try to fill out the paper work and make a claim to disability or file your yearly taxes, those two things have become almost too complicated for the average individual to figure out on their own.

I can understand how easy it is for someone in a mental health crisis to go from having an apartment, to being homeless in less than a year. During a mental health crisis like psychosis there is no way I could participate in the “system” we have set up. I would be unable to figure out my insurance. I would be unable to figure out the ins and outs of banking. I would be unable to pay my bills online. I would be unable to be an advocate for myself in terms of bills, medical, pharmacy, etc. (I think some of this applies to the elderly, too, particularly those with memory issues).

It must be terrifying for caregivers of people with mental illnesses, learning disabilities, and the elderly, etc. to imagine what would happen to the people they care for if they were not around to help them find their way through the hoops and mazes we have to work through in order to have shelter, heat, food, and a way to pay for those things. We have not made the necessities of life easy for people to acquire and manage.

I know my husband worries that if something happens to him, and I have a crisis, that my life will quickly spiral out of control as bills go unpaid, insurance is lost, and the complicated system we have set up is too difficult for me to find my way through.

With so many pressing problems like gun violence, mental health treatment, terrorism, the deficit, etc. there is no way anyone is going to campaign to make the details of life simpler for those people who are most vulnerable, it just isn’t going to happen, but there is something people can do. If you see someone who seems to be struggling to pay their bills, do their banking, or buy their groceries, call Health and Human Services (Adult Services). An early intervention can keep someone safely in their home and get them the support they need.

Let’s agree to watch out for each other. You never know when you, or someone you love, will need the concern of a stranger to help you survive.

 

Psych Central

15 Tuesday Dec 2015

Posted by in mental illness, schizophrenia, Uncategorized

≈ 4 Comments

Tags

, , , , , , , , , , , , , , , , ,

Here is a blog post I wrote for Psych Central this morning. It is about the issue of companion dogs – how they aren’t for everyone. If you are considering a dog, or even if you have one, pop over and see what you think.  It is here.

Here is an article I wrote last week about 5 ways to recover your self esteem after a mental health crisis. I think it is helpful. What do you think?  You can find it here.

It’s beginning to look a lot like Christmas…

Focus On Retail Workers

14 Monday Dec 2015

Posted by in Uncategorized

≈ 23 Comments

Tags

, , , , , , , , , , , , , , , , , , , , ,

Today I will be making snowman cupcakes, brownies shaped like Christmas trees, reindeer cookies, and star and angel shaped mints. The ingredients for these holiday treats are just a few of the things my husband and I have purchased lately. We also bought craft supplies to make 16 coworkers holiday gifts (just something small), stocking stuffers for each other and for my parents, and ingredients for my husband to make his annual 100 mini loaves of banana bread for the homeless. Of course while we were out, we picked up a few things for the house and for ourselves.

That is a lot of shopping. I think it is accurate to say that is at least 10 times more shopping than we do most other months of the year. During this time of year, when I am checking out at a store, I always ask the cashier, “Are you super busy today?” Of course, they almost always say, “Yes.” Then I ask them, “Are people being nice to you?”  They usually tell me that people are being nice to them. Then I say, “Because people can be rude this time of year when they are looking for sales, spending so much money, hurrying to this party or that one.” Then they usually open up and tell me about how rude and mean some customers are to them.

I know it doesn’t seem like much to remember to be nice to the people who work in shops, malls, grocery stores this time of year. But it could make a difference for someone who may be struggling with seasonal depression, bipolar disorder, schizophrenia, autism, cancer, heart disease, diabetes, etc. This is the busiest time of year for anyone working in retail. People with retail jobs are probably working long hours, dealing with every kind of person imaginable, and they are told to keep their cool, and keep a smile on their face. It cannot be easy to provide good customer service to everyone who walks through the door. And of course one in four of them are struggling with a mental illness, and many of them have other chronic illnesses.

It is hard to get out of bed every day. It is even harder to get out of bed, get yourself ready and go to a job. It is tough to put in 4-10 hours. It gets harder still when your job is dealing with the public. It gets more difficult still, when that public can be grumpy or rude because there are longer lines than normal, gifts are expensive, shops are crowded, some items they want may sell out, they may not have the money to spend but they feel they have to.

I know it is the season of giving and people do remarkable things for one another this time of year. I know there is more generosity and kindness in the air than at any other time or season. I also believe there is some magic to be experienced. But at the same time, people can forget that wonderful spirit when they walk into a store and start shopping. I’m just asking that we remember those people who work their tails off during the holidays and extend some of the wonder to them and joy to them.

If you believe our actions send out ripples into the world then start a chain reaction of kindness, compassion, peace and love – imagine how many people retail workers see every day and how many people they can pass the ripple onto. You may be the one who starts the ripple that changes a life or lives. We have the power to make the world better, let’s use it.

Artists Who Promote Stereotypes Of Mental Illness

13 Sunday Dec 2015

Posted by in mental illness, schizophrenia, stigma, Uncategorized

≈ 8 Comments

Tags

, , , , , , , , , , , , , ,

I try to buy products that are handmade, recycled, upcycled, used, etc. I go to thrift stores, used book shops, and love the website, Etsy. The reason I do that is so that I can feel good about all of my purchases knowing I didn’t contribute to companies that harm their workers, use child labor, or pollute the environment. Of course I also support small businesses by shopping at Etsy and support many nonprofits by shopping in their thrift stores. It is a win-win situation all around.

I am not always successful at being a conscientious consumer though. There are times when I am in a hurry and buy products that I normally wouldn’t buy, or times, when I don’t do my research and find out later that I have supported a business, corporation, or in the case I am about to tell you about, some artists that I had no idea created stereotypical information about people with mental illnesses.

I saw this band, and a video they made, in my newsfeed on Facebook (the link I am sharing isn’t the same one I originally saw).   I listened to the song again and again because I loved their remake of the original (I like the original, too).

I posted the video to my Facebook page.

Yesterday, I decided to look up the band on YouTube and see if they had any more songs that I like. This is the first song I found (Trigger Warning – suicide).  Is it possible for the band, Disturbed, to be any more stereotypical about mental illness than they are in that video?  The part that really bothers me is that the video has well over ten million views.

I do not want to support a band that makes videos like that. I guess they think that mental illness and psych wards make you edgy, dangerous, different, and cool. It is easy to see why so many teenagers write poetry about mental illness and inaccurately think they are “crazy.” When the bands you listen to and look up to are making videos that you watch over and over again and those videos are about stereotypes of mental illness – when was the last time you wore a uniform in the psych ward? That isn’t of course the worst of it – the message of the video is that the “keepers” of the psych ward are “jailers” and they are out to punish, change, hurt, and subdue, and even kill you.

I find that people who fall back on stereotypes to sell their art are not very creative. They certainly aren’t edgy, different, or cool. To be truly cool and edgy you have to put a new message out there. This one is as old as lobotomies, and I give this band a thumb down. No, worse than that, I give them an F at social messaging that impacts others. They reached millions of people with images that harm millions of Americans. I wish the media would pick up on this type of “stereotyping” and call artists out and hold them accountable. It is a shame that they can make money by making our lives worse – we have to live with the stereotypes they promote. This band reminds me that we have such a long way to go in seeing mental illness as the disease that it is, and we can’t even count on artists to take us the next mile or so – we have to move ourselves forward and it feels like we have to do that by crawling on our hands and knees.

 

Having A Mental Illness But Thinking Of Others

11 Friday Dec 2015

Posted by in bipolar, hope, mental illness, relationships, schizophrenia, Uncategorized

≈ 10 Comments

Tags

, , , , , , , , , , , , , , , ,

I took three coats out of my closet last night. My husband is going to take them to the church where he volunteers to feed the homeless and low income. I feel good knowing that I am giving a gift, even if it is a small one, to someone else today.

It is good to get out of my own head. It is good to stop thinking about my own problems and think about others for a while. Having a disability is not a competition. It is not, “My life is harder than yours, or they have it worse than me.” The important thing to remember is that as humans we all struggle. It isn’t easy for any of us.

And although it isn’t a competition, when I think of the lives of others – people who have survived war and lost limbs, people who have survived a fire and are badly burned, people who have a terminal illness, people who have no shelter this winter, people who are hungry, people who are living in war torn areas, and the list goes on of ways that people are suffering- I think to myself, “I will take my struggles over theirs.”

There is an old story about a group of people throwing all their problems into the center of the room, and each person being required to pick up someone’s problems and make them their own. All of the people in the group chose their own problems instead of trying to live with someone else’s problems.

People look at us and don’t want our problems, and we in turn look at them, and don’t want theirs.

I think it is important especially for those of us with a mental illness, to consciously think of the struggles of others. It isn’t that I think we are all narcissists and thinking only of ourselves, but we can spend a whole lot of time looking for our symptoms to manifest – changes in sleep, weight loss, weight gain, changes in thought patterns, anxiety, depression, etc.

It is easy to get lost in ourselves and our illness. Insight into our illness is important, but I have found that when I am concentrating on someone else, I suffer from fewer symptoms. When I am focused inward, I notice every small change in my well-being. The truth is I am healthier and happier when I am not so self-focused.

Let’s all give ourselves a holiday gift this year – let’s give some coats or sweaters we don’t use to a homeless shelter, let’s buy a few toys for foster kids, let’s make soup for someone battling an illness, let’s call a friend who recently lost a pet, or a job. Let’s reach out and try to ease, if only slightly, the suffering of someone else.

The gift you receive in return may be a little less of your own suffering. We are important to one another – everyone benefits from generosity, empathy, compassion and care. I think if we focus on others for a short time every day, we can make life better – that is such important work – the most important because it is love and we all know that love can get into the cracks and heal most wounds. Let’s be the ointment others need. It’s good for us, it’s good for them.

Netflix and Psych Central

08 Tuesday Dec 2015

Posted by in mental illness, schizophrenia, Uncategorized

≈ Leave a comment

Tags

, , , , , , , , , , ,

My new blog post on Psych Central is up. It is about a new series on Netflix called, River.  It is a cop show so it is not recommended for children, but for those of you who are curious, I think it does an excellent job of portraying schizophrenia. Although, in an interview, the main actor says it is not schizophrenia he is portraying – how disappointing.  I hope you enjoy the post. If you watch the show, let me know what you think.

Dear Santa

07 Monday Dec 2015

Posted by in bipolar, heroes, hope, mental illness, schizophrenia, Uncategorized, writing

≈ 27 Comments

Tags

, , , , , , , , , , , , , , ,

Dear Santa,

There is only one thing on my Christmas list this year. I would like you to find two men and deliver this letter in a sealed envelope in their stockings. If they don’t have stockings, can you please hang one for them?

Here is all I know about the men, and why I want to give them this letter:

On a night back in 1997 I stopped my car on the Tacoma Narrows Bridge, climbed over the railing and was hanging high above the icy water of the Puget Sound. A man stopped his car, came to the edge and said, “Give me your hand.” That man pulled me to safety.

On the same night, I took all of my prescribed medication and then drove my car. I passed out on I-5 between Tacoma and Seattle. A man stopped his car, tried to wake me, had difficulty getting me to respond, so he called 911 (I don’t know how as cell phone were pretty rare then). He waited with me, and tried to keep me conscious until an ambulance arrived. I remember him asking, “Is she going to be alright?”

Santa, here is the letter:

To the two men who saved my life,

You are directly responsible for giving me the opportunity to find the love of my life and experience 17 years of marital happiness. My husband and I are grateful.

You are directly responsible for giving me almost two more decades with my family (hopefully, there will be more). My family and I are grateful.

You are directly responsible for serving the elderly, the homeless, and college students in the jobs I have had since you saved my life. I am sure there are people whose lives I have impacted in a positive way that would be grateful.

You are directly responsible for the blog that I have been keeping over the last nine months that encourages, educates, and uplifts people living with, or caring for someone with, a severe mental illness.

You are directly responsible for allowing me to become and be a good friend to many people.

You are directly responsible for the woman I let get in front of me in the grocery line last night. You are directly responsible for the surprise, gratitude, and appreciation people have shown when I randomly bought their coffee or groceries, and for the neighbors who I have babysat for, made cakes for, and brought soup to when they were sick.

I am an average person, but in an average life, many people are touched, changed, loved, helped, and made to feel special or cared for.

I’m not going to save the planet or solve world hunger, but the past 18 years have been the best of my life, and I have tried to live with an attitude of gratitude and generosity. You made a remarkable difference in so many people’s lives – kept some from grieving, helped some find love, helped some find jobs, comforted others.

You never left your name so I could thank you in person, but I know Santa has his ways, so I’ll leave it in his hands.

I just wanted to tell you how much your choice on that night back in 1997 mattered. It mattered to a lot of people. It continues to matter. I am so thankful for the two of you.

I hope this letter finds you healthy and happy. Your kindness, compassion and concern have literally given me life. I don’t have anything but stories to share with you – I hope they will lift your heart.

Merry Christmas.

 

Staying Sane In An Insane World

07 Monday Dec 2015

Posted by in hope, relationships, schizophrenia, Uncategorized

≈ 18 Comments

Tags

, , , , , , , , , , , , , ,

Today in church these thoughts went through my mind, “What if a shooter comes in here and opens fire? Will I cover my husband’s body with my own? Will I grab that child sitting in front of me, and lay on top of her? I hope that I will do something, anything, brave and courageous.”

We aren’t big sports fans in our house, but we have a couple of teams that we follow, the team that represents our city, and the team that plays for the college my husband went to. One of our teams made it into a college bowl, and I immediately called my husband and said, “Do you want me to get 3 tickets or 4?” As I was waiting for my husband to reply, I thought about being in the stadium with a large group of people. Again, I thought about the possibility of a mass shooting.

Every day my husband goes to work on a military base. Once I was there with him, and there was a lock down because someone reported a shooter. We were in a different area than the report, so it wasn’t terrifying, but it was worrisome thinking of all the people we know whose offices were in the location of the reported shooter. (Everything turned out to be okay).

A few weeks ago, there was an active shooter in the building next to mine. I hid in my bathroom until the police evacuated me from my home. You can read about the incident here.

I know that I have a mental illness and that I tend to be paranoid, worried, and at times get morbid or disturbing ideas in my head (this is why I try not to watch anything too scary or gruesome on Netflix or at the movies) but there have been two events in my life that involved shooters. That can’t really be paranoia or my mental illness if it has been a reality in my life (not once, but twice).

It would be easy to let my thoughts overtake me on this issue. It would be easy to stop going to events where large numbers of people gather. I could get so fearful that I ask my husband to change jobs (he wouldn’t, but I could make him miserable with my fear and overprotectiveness).

I believe that I have to work through many parts of my mental illness (thoughts) in order to live the most productive life I can, and to enjoy life to the extent that I am capable. So today I came up with something to help me cope with all the random violence surrounding each and every one of us.

My husband and I decided when we got married to never go to bed angry at each other. In the almost eighteen years that we have been married, we have only failed at this once. There was only one time when we went to sleep before working out the anger we felt toward one another. I think of that as a pretty good record.

Today, right now, we are adopting something new into our relationship. We have promised each other never to separate from each other while we are mad, or unhappy with each other. In other words, before he goes to work, or before one of us runs an errand, or goes out to be with friends, we need to look each other in the eyes and tell each other that we love each other without anger, or without hard feelings.

There is only so much I can control on a daily basis. I can’t control the fact that terrible things happen to good people, and that it is possible, that one day we will be the good people something terrible happens to. I can’t control the fact that we could be the victims of a tragedy, but I can control the last words my husband hears before he walks out the door. I can control how many hugs I give him before he leaves our house. I can make sure I kiss his lips and tell him that he is the most important person in my world. Yes, I can control the knowledge he has about my love – that is something he can carry with him where ever he goes and in whatever circumstance he finds himself in. What I can control, I will, and that will help keep me sane in a world that seems to have lost so much of its sanity.

 

 

When Companies Get It Right

05 Saturday Dec 2015

Posted by in mental illness, schizophrenia, travel, Uncategorized

≈ 7 Comments

Tags

, , , , , , , , , , , ,

If you have been on a plane lately, then you know that flying has become an almost miserable experience. No one wants to pay for their baggage, so they try to carry on as much as possible. Everyone tries to get on the plane as quickly as possible to make sure their carry-on bag has space in the overhead compartment. Seats are smaller. The seats toward the front of the plane (behind first class) are now considered an upgrade on most flights and cost extra money. People are rushed. People are uncomfortable. You no longer get a meal on a flight (unless you pay for it, and even then, they are usually out of most of the choices by the time they get to the seats near the back).

Airlines tend to be the one industry that doesn’t care at all about customer service. Rather than getting better over the years, they have been getting increasingly worse.

That is why my story of my trip to Seattle on Alaska airlines stands out.

When my husband and I went to check in on the Internet the day before our flight, there were no seats left together. My anxiety started to go up. When I fly, it helps me to be in an aisle seat because I drink a lot of water on the flight and have to get up frequently to use the bathroom. My husband, always the good sport, takes the middle seat even though it is the least desirable, so that we can be together on the flight and he can help me if I am overcome by anxiety.

We went to the airport at 6 in the morning (two hours early) to see if we could change seats and also to make sure that we weren’t rushed or hurried. When we arrived at the airport we asked a woman by the Alaska ticket counter if we could change our seats. She told us it was better to change them with the person working at the gate.

We headed for the security line. We took out all of our liquids. We took off our shoes. We put our laptop in a bin by itself. We emptied our pockets. We have traveled enough since 9/11 to know the rules about security. We made it through the x-rays (I got patted down) without incident.

We found a departure board and located our gate. We started walking down the long corridors with the people movers. We had plenty of time, so we walked on the carpet in the center instead of on the moving sidewalk. At our gate, we found two seats, and made ourselves comfortable. There were no employees at the gate yet. My husband went to get coffee and my water for the flight, and when he returned I went to find the restroom.

At the gate next to ours, there were Alaska employees, and even though it is so unlike my husband to do anything outside the rules or norm, he went to the neighboring gate and asked the woman working if she could seat us together. She changed our seats (moving us up a few rows, but we still weren’t together). She told us to wait until the crew members for our gate showed up.

As soon as the employees working our flight showed up, my husband jumped up and went to ask if they could seat us together. He told the woman at the gate, “My wife has a mental illness and can’t fly alone.”

The woman my husband talked to said she would work on it, but she wouldn’t have an answer for us until almost the time that we needed to board. The flight was a full flight. There was only one seat open on the plane. She must have had to ask other passengers if they were willing to move to try and accommodate my husband and me. I am not sure, but close to the time we were boarding, she called my husband up to the gate and gave him boarding passes for two seats that were next to each other – an aisle seat and a middle seat.

This may not seem like a big deal, but in a travel environment where no one seems to care about the comfort of the passenger, this was extraordinary. The Alaska employees worked hard to make sure that we would be as comfortable as possible and they did it willingly, kindly and with smiles.

We booked another flight to Seattle last night, and without a bit of thought or hesitation, we booked it on Alaska.